Clinical quality registry
This is not an EHDS/GDPR definition. A type of data holder; cf. the data category "medical registries", Art. 51(1)(l) EHDS. Defined in Article 1 of the Healthcare Quality Registries Act.
A quality registry involves the collection, storage, and further processing of data—including personal data—concerning a client population, carried out for the purpose of measuring and improving the quality of care provided to that population. A client population is a study group of clients defined by shared characteristics regarding their condition, disease, type of care, or complication, or combinations thereof. Examples include registries such as DICA, IKNL, or Perined, which record healthcare outcomes on a large scale; these are significant data holders that could potentially be designated as trusted holders under the EHDS.
Questions about what this term means for your organisation? Contact Mr. Dr. Vlieger.