Data altruism
‘the voluntary sharing of data on the basis of the consent of data subjects to process personal data pertaining to them, or permissions of data holders to allow the use of their non-personal data without seeking or receiving a reward that goes beyond compensation related to the costs that they incur where they make their data available for objectives of general interest as provided for in national law, where applicable, such as healthcare, combating climate change, improving mobility, facilitating the development, production and dissemination of official statistics, improving the provision of public services, public policy making or scientific research purposes in the general interest.’
The EHDS Regulation does not define this term itself; it refers to it through Article 2(1). See Article 2.
Questions about what this term means for your organisation? Contact Mr. Dr. Vlieger.